General Description Department: Mental Health
This position will work on data collection in an NIH-funded study of end-of-life care preferences. Our study represents a rare and time-limited opportunity to address end-of-life decision making in a cohort of 1337 former medical students of The Johns Hopkins University School of Medicine ranging in age from 71 to 94 years and living throughout the United States. The study will ask new questions of the cohort about decision control preferences (how) and transitions in preferences for aggressiveness of care (what). A wealth of existing data on behavioral, physiologic, clinical, and psychosocial factors collected prospectively annually from young adulthood to old age will be examined as well as new data collected to understand factors influencing these preferences (why). Since 1999, at 3-year intervals, participants have provided their preferences for end-of-life care, whether they have discussed end-of-life care with doctors or family caregivers, and whether they have advance directives such as a living will or durable power of attorney for health care. An Endpoint Committee uses standardized criteria to classify CVD, diabetes, osteoarthritis, gout, and other outcome on study-specific forms developed to assist chart review.
Primary duties and responsibilities:
The primary task will be to carry out semi-structured, qualitative telephone interviews with selected cohort members. Each interview should take between 30 and 60 minutes, using an interview guide and training provided by the investigators. In addition, the RA will carry out structured questionnaire interviews, assist with organizing the review of the Endpoint Committee, and working with the investigators on study-related tasks. Interviewing physicians with a lifetime perspective on medicine will be a great experience, but we also expect and encourage opportunities for motivated persons to assist in manuscript and presentation preparation.